Learning to Care for Maia’s Specific Needs
“Finding a genetic diagnosis for our daughter, Maia, that explains so many of her symptoms has relieved our family of years of worry and guilt. It’s given us answers to questions we never knew we had! We can look at her health, both emotionally and medically, with a new perspective that has given us a better direction in the services we provide for her. Our whole family is seeing the differences in how each of us view her behaviors and we are learning how to better support Maia’s needs and care for her more specifically to those needs.
We have also been given a new community to learn from and lean on. It’s been a great comfort to know that there are other families that know our experiences, our celebrations and challenges… I hope more families can take advantage of genetic testing and find answers to better help their families.”
- Calleen & Alan, Maia’s parents
