ETHAN’S STORY

Finding Ethan’s Cheering Squad

“Genetic testing is something we will forever be grateful for. We met with almost every specialist and no one could direct us to a concrete answer. Finally… we ended up being referred for genetic testing. It was such a relief to know that we were not alone and we decided to attend an upcoming conference to learn all that we could.

I remember feeling so grateful that my mission to find an “answer” as to why Ethan is the way he is was over. This finding propelled us into a beautiful journey. We were able to meet families from all over the world to share the highs and the lows, because they knew exactly what we were going through. It not only gave us an answer to Ethan’s delays, but gave us a path and a cheering squad to support us along the way.

Genetic testing not only changed our lives, but Ethan has helped to change the world. We would never have had the opportunity to champion this cause, which can happen from a simple cheek swab.”

- Kadi and Todd, Ethan’s parents

SEE MORE OF BEN’S JOURNEY WITH GENETIC TESTING